I, Lady Shasta of Beaglebratz Manor iz now the matriarch of Team Beaglebratz an'Beaglebratz Manor. My uncle/bruther, Lord Shiloh, b-came an Angel at the Rainbow Bridge on March 9, 2016. Not much else iz gonna change around here rite now. This iz now MY blog - u MITE c sumthin'frum my mom SUMTIMEZ since she duz pay fer it butt it will mostly b fer me. You also just mite c Angel Shiloh stop in once in a while since he wuz an'still iz a big influence in not only my life BUTT my mom'z life tue.
Ok, remember the Herpes eye infection was just discovered yesterday afternoon.
Treatment began soon after but I saw my specialist earlier this afternoon.
So that means the treatment has only
had one day to work.
My specialist thought he
might have seen a small improvement.
You would think that as quick as this infection came on that it wouldn't take long for it to go away once treatment began and
it may be that way for someone with
"normal" eye health but
that ain't me.
So for the time being I will take that "might have seen a small improvement" and
run with it.
Next Monday (1/2/12), I am off work for the New Years holiday and have my next eye appt. with my local doc - two weeks from today I see my specialist again. I have additional appts. already set for the next 6 weeks after that IF they are needed - I am hoping and praying
they are NOT needed!
So now it is time for bed - just not organized and keep getting here late. Rarely seem to have time these days to visit other blogs.
Not much going on - finally got a paycheck the Friday before Christmas but already had Christmas presents for my family courtesy of a Christmas club savings so besides helping buy Christmas dinner for sis and her son - also went shopping today and was able to pick up a few really good bargains. I think Shiloh'n Shasta want to post about a "Santa invasion" so will just say that I was able to add to my Santa Clause "family". Between a couple of Christmas presents and the shopping today, my sis was able to add some to her snowman "family" altho it is not as extensive as what Frankie Furter's mom has.
Ok, now for a little drama - seems like I can't go long without it and I bet you all can't guess what it's about - yep, my eye - less than five weeks since the transplant. We had to cut short our shopping trip since I had a previously scheduled local eye doc appt. One of the drops I HAVE to use after a transplant is a steroid drop which can lead to the development of a Herpes Simplex eye infection and after you get it once then the virus never totally leaves your body but is dormant until something like a physical or emotional stressor can cause it to flair up - my first infection with it was several years ago and now it has flaired up again. There is much GOOD news about this infection tho - it was caught early and treatment has already begun. Even my vision has improved one more line on the eye-chart since my last visit with the specialist. And that specialist just happens to be here in town Tuesday afternoon so my local doc wants me to see him if the specialist wants me to come in AND since I was previously scheduled by the specialist's office then that should be no problem.
Well not much else to report - was close to pulling my hair out last week as I tried to get everything done that I wanted - I don't think I have ever had a year where I was so dis-organized. My original plan included being off work the week before Christmas but I lost those days since I was off so long earlier this fall so I ended up having to work. Don't get me wrong, I was sooooooooooo glad to be able to return to work but I missed having those days off and I hope I can get them next year. Well my eyes are trying to shut and I am starting to have to correct my spelling more and more. I need to let Shiloh'n Shasta outside before bed so I will try to do an update tomorrow evening.
(WARNING, could be an excessively long post ahead)
I get a few comments from people sometimes about my perseverance and dealing with all the stuff going on related to my disabilities, especially my eyes/vision since that seems to be what I'm bothered by the most. I really do appreciate all them and I just had the thought that they, at least in part, help to motivate me to keep going the way I do.
And I'm sure no one would be surprised when
I say that Shiloh'n Shasta play a big part of my
"keep on keeping on".
Of course I cannot deny that my family at home
and friends here in Blogville also play a part in my
"keep on keeping on".
Now for a little of my own "philosophy" or where else
that thought came from.
Until November 22, 1976, I was pretty much of
a "normal" kid of 19 then
I had surgery to remove a large benign brain tumor.
Don't let anyone ever say that if a tumor is not cancerous then
no problems - now I have to admit that today it would not
have caused the problems it did then but medical advances since
then have greatly reduced the complications and problems
that would result from such surgery.
Let's suffice it to say,
I was almost like a newborn when
I came home from the hospital-
I had to relearn much.
At that time my parents, sis and I lived on a small farm
just north of town.
So that means that at that time my family played a HUGE part in my rehab and MANY of the things I do today would not take place if it weren't for them.
I am sure that this in part is responsible for what goes on today.
And there are 2 or 3 beliefs which I know motivate me-
not sure how others feel about this subject BUT
this IS MY (and the Beaglebratz) blog.
After that first surgery and any other subsequent surgeries,
some people might have just given up or at least
not tried so hard and not want to
"keep on keeping on".
I will be the first to admit-
I have had a few thoughts like that
tho they were fleeting.
Then my faith in God intervenes-
I do believe that God wants His
children to be happy
and to have a
good life and to do the best they can with what they have.
The next belief can be somewhat of a challenge-
it is for me sometimes.
I really do believe that miracles do happen BUT
the biggest problem I have with this is I forget
that miracles do happen-
IN GOD'S TIME and
IN A WAY THAT GOD KNOWS IS BEST FOR US!
Now this last belief I want to share with you- in a way, this is the same belief that Sandra mentions after that horrible fire at the Houston Pittie Pack- about God not giving you more than you can handle. OK, FIRST I want to make sure people know that I believe NO ONE has an incorrect thought - EVER! I agree with the psychologist, Bowen who said something like your feelings, thoughts and beliefs are never wrong because they are automatic- maybe like that of a dog's instinct in that they just happen- we don't really have any control over them but only how we react or respond to them. Now I have had people say that to me about my disabilities that God never gives you more than you can handle and at times, I have had that same thought but then I thought, ok if God wants his children to be happy and enjoy life then why would He give anyone things like disabilities or a horrid fire that took the lives of 5 loving creatures? So a few years ago, I heard a pastor say God doesn't GIVE the bad things in life- sh*t just happens. In other words, it is all a part of life and sometimes stuff in life just happens. (My words now) In other words, life sucks sometimes and things happen that we don't understand. But like the pastor said- God is there for us to turn to when we need Him and believe me, I have needed Him alot since that day in November, 1976.
Ok, I'm done with my speech above-
now you all know that when
Mom is quiet for too long, then
when she does talk (or post)
SHE NEVER STOPS!
Work is going well, I guess-
my job is about 95% computer work and
after 90 days of non-use then
your access is taken away.
Oh I will get it back BUT
it could take up to 2 weeks.
And for those of us who have ever worked this time of year, it is almost impossible to get things like computer access very quick.
Plus they have to check that my account at the regional office in Austin, Texas was not deleted.
Me and the Beaglebratz have only been gone from Blogville a few days - since going back to work (everything with that is going well) this has cut down on my at home computer time and I am tired after getting home plus getting ready for Christmas. But now, when I do get here and on Facebook, I read so much about the unfathomable and most terrible tragedy that has struck the
Yep - tis true tis true. Of course if I was independently wealthy or at least had a good source of a second income then not working would probably not be such an issue. And of course, I do hate terribly having to leave the Beaglebratz behind - I am SURE they will have a few choice wordsI mean barks for me when I do get home.
Anyway, at my appt. last week, my vision was still between 20/150 and 20/200 - an improvement believe me but I was worried - would it be enuf. I should not have worried - today when I saw my specialist, my vision was up to between 20/60 and 20/70 AND my specialist expects it to improve even more-
Ok, well this past Wednesday when I left my specialist's office, I had learned further info of what is exactly involved in the entire process of a cornea transplant - I fuess that info maybe was explained to me years ago ( after all, this was my fourth time) actually I probably should have known but in the whole process maybe I forgot that part.
I guess I always thought that even tho it is a intricate surgery, it just involved taking my old bad cornea out and then putting in the donor tissue then of couse there was always the possibility of the new cornea being rejected but as of now rejection is not the issue with me - no, that is a relatively easy problem to take care compared to the issue I am dealing with now altho it too is nothing new to me' my vision has improved and as I said, no signs of rejection of the new cornea however after the new cornea is put in place, I still had to regrow my own tissue to cover the donor cornea - when the specialist examined my eye, this regrowth had yet to begin - I did not realize this was suppose to happen but once I knew then I was not really surprised because I know how slow that area heals for me. As a result I am now wearing that bandage contact lense again - the one I can see thru but has no power in it. It helped a bit - for my piece of mind - to know that my specialist was not surprised this happened. So now I am bak to waiting - I go bak to the specialist next Wednesday, 12/7 so I hope I will know more then - especiall since I am set to go bak to work on 12/12.
We are all doing well otherwise - just trying to stay warm. May get a little freezing rain this weekend. Kim, Shiloh'n Shasta